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- Mesothelin Finding Could Lead to Early Detection of Mesothelioma
- New York Attorney Calls for International Ban on Mesothelioma-Causing Asbestos
- Protein Can be Reliable for Diagnosing Malignant Mesothelioma
- Biomarker Successes Remain Elusive For Mesothelioma and Cancer Researchers
- Avastin May Not be Effective for Breast Cancer, But is Still an Option for Mesothelioma
- Options for Funding Mesothelioma Research
- Golf Outing to Raise Funds for Mesothelioma Research
- 3 Year Mesothelioma Survivor Stays Busy Raising Awareness of the Disease
- MesotheliomaHelp Website Offers Mesothelioma-Related FAQs
- CDMRP System Offers Funding Opportunity to Help Military Mesothelioma Sufferers
Thursday, December 31, 2009
by Nancy Meredith
Online social networking allows individuals to develop contacts among people who share their same interests and activities through emailing, posting information and photos, and sharing stories. As sites such as Facebook and Twitter have gotten more popular, businesses and charities have jumped on the bandwagon and have started creating Facebook pages and Fan sites to build awareness and interest in their business or cause. Mesothelioma is one area that has benefitted from the offerings of Facebook.
Mesothelioma is a serious cancer that occurs in individuals exposed to airborne asbestos fibers. Even small amounts of asbestos and infrequent exposure can create a risk for contracting mesothelioma or other asbestos-related diseases. Mesothelioma is highly aggressive and is resistant to many cancer treatments. Currently there is no known cure for the disease.
Raising Awareness
Many of the mesothelioma foundations and charities have established Facebook pages. Through these profiles they are able to post events and share key information on activities and the latest news regarding mesothelioma. Several also have direct links to collect donations, thus, providing an additional avenue for raising critical research dollars.
By building their “fan base” the foundations and charities raise awareness of the devastation of mesothelioma and encourage people to get involved in the fight against the use of asbestos. As Facebook users join a site the name of the organization displays on the person’s Facebook wall encouraging their network of friends and family to visit the site as well.
Mesothelioma Advocacy on Facebook
Following are several organizations raising awareness of mesothelioma through Facebook.
Mesothelioma Applied Research Foundation (MARF)
The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease.
Bernie Banton Foundation
Bernie Banton is known in Australia and around the world for successfully taking on the James Hardie company to increase the asbestos-related disease victim’s compensation fund. The foundation is the breath beneath the wings of asbestos disease sufferers, their carers and loved ones.
MD Anderson Cancer Center
The mission of M. D. Anderson Cancer Center is to eliminate cancer in Texas, the nation, and the world through outstanding programs that integrate patient care, research and prevention. The cancer center has over 30 specialists on staff that supports their multi-disciplinary approach to treating mesothelioma patients.
Mesotheliomahelp.net
A detailed resource for victims and their families which includes a searchable directory of mesothelioma doctors and clinics across the U.S. Sponsored by Belluck & Fox, LLP,a nationally recognized law firm that represents individuals with asbestos and mesothelioma claims.
Year of the Lung
FIRS members are organizing this campaign because “we believe the lack of public awareness of lung health is an important barrier to progress in the diagnosis, treatment, and development of discoveries in lung diseases and calls for a major worldwide public awareness campaign.”
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: Featured Story
posted by Nancy Meredith at 8:00 AM
Wednesday, December 30, 2009
Included within the Carcinomas of the Lung and Other Intrathoracic Carcinomas section on eMedicine from WebMD, Winston W Tan, MD, Assistant Professor of Medicine, Mayo Medical School, authors detailed information on mesothelioma. Tan provides overview information on mesothelioma as well as differential diagnoses and workup, treatment and medication, and followup.
Laboratory Studies, Imaging Studies, Procedures, and Staging are covered in detail when explaining the workup a patient will undergo during the diagnostic process of mesothelioma. When identifying the treatments and medications available to mesothelioma patients, the documentation provides regimen information for chemotherapy drugs such as cisplatin and pemetrexed plus gemcitabine.
Along with the detailed mesothelioma information, links are provided to associated articles for asbestos-related diseases including asbestosis, and other occupational respiratory conditions. Articles published in Medscape, on WebMD, and through other medical journals may be provided as well as slide shows and videos from presentations and other venues.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma
posted by Nancy Meredith at 10:14 AM
Tuesday, December 29, 2009
Yoga Bear, a non-profit organization started in 2006, supports the belief that “cancer patients and survivors can benefit from yoga as a complementary treatment in cancer recovery.” The MD Anderson Cancer Center, known for their mesothelioma treatment center, also agrees with this approach offering yoga classes for patients in their cancer center.
Mesothelioma, an unusual form of cancer which can take up to five decades to be properly diagnosed, is responsible for approximately 3,000 new cases each year in the United States. Although there is no cure for mesothelioma, it can be treated with varying degrees of success through the use of surgical procedures, chemotherapy and radiation, accompanied by holistic therapy.
Holistic therapy and yoga offers students a mind/body approach to coping with mesothelioma and other cancers. One study conducted by the Albert Einstein College of Medicine found that yoga offers beneficial effects on social functioning among breast cancer survivors. Also, yoga appears to enhance emotional well-being and mood.
The team at Yoga Bear is dedicated to offering both patients and survivors with opportunities for wellness and healing and matches them with free local yoga classes. Yoga Bear also provides on-site yoga classes in hospitals across the country including George Washington University Hospital, Kaiser, Maimonides, and Mt. Sinai, cancer centers, and through support groups such as The American Cancer Society and the Leukemia & Lymphoma Society.
Yoga is the primary activity that can “massage” all internal glands, organs and joints of the body that rarely, or never, get externally stimulated during our entire lifetime. This stimulation and massage benefits the health of mesothelioma patients by improving flexibility and mobility.
Before undertaking yoga, or any exercise regimen, check with your physician.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma, Treatment News
posted by Nancy Meredith at 8:00 AM
Monday, December 28, 2009
With a goal to “reward scientific excellence and to encourage innovative investigations in the field of lung cancer prevention research” the International Association for the Study of Lung Cancer (IASLC) is accepting applications for Fellowships and Young Investigator awards until January 10, 2010.
The awards are supported through educational grants from GlaxoSmithKline, Sanofi-Aventis, AstraZeneca, Celgene, Pfizer, Eli Lilly, and OSI. Eli Lilly is the maker of Alimta which is used in the treatment of malignant mesothelioma.
Mesothelioma, a cancer caused by asbestos exposure, can affect the lining of the lungs known as pleural mesothelioma, or the lining of the abdomen resulting in peritoneal mesothelioma. In rare instances, the lining of the heart can be affected resulting in pericardial mesothelioma.
A decision on applications will be reached by March 2010.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma, Research News
posted by Nancy Meredith at 8:00 AM
Friday, December 25, 2009
CancerCare offers a place for people to honor their loved ones who have been affected with mesothelioma and other lung cancers. Through their online Wall of Hope people are encouraged to make an entry: “Celebrating survivors, remembering loved ones, or supporting people facing lung cancer today.”
Pleural mesothelioma is a rare, aggressive form of lung cancer primarily caused by exposure to airborne asbestos fibers. Close to 3,000 Americans are diagnosed with the cancer yearly.
Lungcancer.org, a program of CancerCare, is a nonprofit organization providing free support services to anyone affected by lung cancer and those that care for them. Lungcancer.org also offers information to promote awareness of the impact of environmental hazards such as asbestos resulting in mesothelioma and other lung diseases. Lungcancer.org is a partner with the Lung Cancer Clinical Trial Call To Action.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: For Your Family
posted by Nancy Meredith at 8:00 AM
Thursday, December 24, 2009
Sanofi-Aventis, a global drug manufacturer, has given a $2 million gift to the University of North Carolina-Chapel Hill Lineberger Comprehensive Cancer Center in recognition of the center’s strong research. UNC Lineberger is the only public comprehensive cancer center in North Carolina, and works towards their mission to reduce cancer occurrence and death in North Carolina and across the nation.
The hospital plans to use the money for clinical research and programs for patients. A committee will ultimately determine the final use for the money, but the hope is that it will fund new research for therapies not currently funded with Federal grant dollars.
Sanofi-Aventis sees the donation as a way to partner with a research institution for research and development of new cancer treatments. Ideally the company will develop new cancer drugs based on discoveries made by the team at UNC. Sanofi is the maker of Taxotere, a chemotherapy drug for the treatment of non-small-cell lung cancer treatment.
Taxotere is also used for the treatment of breast, prostate, gastric, and head and neck cancers. While it is often used in conjunction with cisplatin, a chemotherapy drug used for malignant mesothelioma, the two drugs are not indicated for use with mesothelioma.
Mesothelioma, an aggressive cancer caused by exposure to airborne asbestos fibers, affects close to 3,000 Americans each year. The disease is often in an advanced stage at diagnosis leaving patients with a survival rate often less than a year. Currently, there is no known cure for mesothelioma.
The Thoracic Oncology program at the hospital, treats patients with mesothelioma, non-small cell lung cancer, small cell lung cancer, and esophageal cancer where the physicians take an individualized care approach for patients. Specialists from pulmonary medicine, surgery, medical and radiation oncology, pathology, and oncology nursing are included on a single team to best treat the patient.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma, Research News
posted by Nancy Meredith at 8:00 AM
Wednesday, December 23, 2009
Libby, Montana is home to a vermiculite mine that is blamed for widespread contamination from asbestos exposure. Libby has a high incidence of asbestos-related disease, prompting the U.S. Environmental Protection Agency to declare a public health emergency in the town and the surrounding area earlier this year. Asbestos contamination in the Libby area has been blamed for the deaths of more than 200 people and the illnesses of more than 1,000 more to date. Many have died from mesothelioma.
Mesothelioma is a rare, aggressive form of cancer primarily caused by exposure to airborne asbestos fibers. Close to 3,000 Americans are diagnosed with the cancer yearly. There is no known cure for the disease.
The hard work of Senator Max Baucus, Democrat of Montana, has paid off again by including a passage within the Health Care Reform Bill to expand Medicare to cover certain victims of “environmental health hazards.” Baucus who has been fighting for years to bring some relief to the Libby residents, is also responsible for the declaration of the health emergency requiring the federal government to offer screenings and health care for Libby residents as well as authorizing cleanup work in homes and other structures.
As quoted in a New York Times article Mr. Baucus said “the people of Libby were poisoned and have been dying for more than a decade. We need this type of mechanism to help people when they need it most.”
Read “Types of Mesothelioma” for more information about the deadly disease.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: asbestos, mesothelioma
posted by Nancy Meredith at 8:00 AM
Tuesday, December 22, 2009
By Nancy Meredith
Dr. Arthur Frank Leads Program
Dr. Arthur Frank, MD, PhD has dedicated his career to the study of occupational lung diseases such as asbestosis and silicosis, occupational cancers related to asbestos exposure, such as mesothelioma, as well as to the prevention of occupational diseases. Currently Professor and Chair of the Department of Environmental and Occupational Health, Frank hopes to pass his passion on to the students in his program.
Frank was one of the featured speakers at the conference “Preventing Emerging Occupational and Environmental Risks in South Asia and Beyond” held in New Delhi, India last week, and has spoken previously regarding the high rates of mesothelioma in many countries as well as the impact mesothelioma, and other similar diseases, has on a global scale.
A strong advocate for public health, Frank was one of the initiators of the petition “Totally Ban Asbestos in Industrial Materials, Consumer Products and Toys,” presented to Congress. Dr. Frank is board certified in both internal medicine and occupational health medicine, and is a commissioned officer in the Public Health Service.
Focus of the Program
The primary goal of the Department of Environmental and Occupational Health (EOH) is “to prevent adverse health effects related to environmental and occupational exposures through research, education and service.” The staff and students in the department carry out the mission under the framework of: communities, social justice, and human rights. The core of their work is prevention, with a goal to measurably decrease the burden of environmental and occupational health effects.
Through research the department addresses airborne contaminants, lung disease, asbestos, patient and workplace safety, and other areas related to public health. EOH faculty and staff are known for their expertise and they travel extensively to train and educate national and international environmental health officials. Partnering with the Asbestos Disease Awareness Organization, Drexel’s expertise will support the 2010 conference entitled: “Global Mission: Action to Prevent, Detect and Treat Asbestos-Related Diseases.”
Joseph W. Belluck, a partner in Belluck & Fox, a New York personal injury law firm that concentrates in representing victims of asbestos-related disease, recently cited a 2009 report from the National Institute of Occupational Safety and Health that stated that the annual number of deaths of malignant mesothelioma is still increasing.
Courses Focus on Key Occupational Hazards
Students that complete the Masters of Public Health (MPH) program at Drexel will be prepared to enter an array of public health fields working as researchers, planners and practitioners, as well as being prepared to move on to the doctoral program. The courses offered cover such diverse topics as preparedness, vulnerable populations, and healthy homes.
Through traditional lectures and lab exercises students will learn about environmental hazards, epidemiology, and the importance of communication across cultures. The curriculum remains current and up-to-date and includes information pertaining to major health policy issues facing the United States.
Mesothelioma, one of the most devastating occupational diseases caused by exposure to asbestos, and other occupational diseases received national attention this week with the Health Care Reform Bill including expanded Medicare to cover certain victims of “environmental health hazards.”
Students Get Hands-On Experience
A large portion of the MPH is the community service component. The program requires the students to spend 1.5 days or more each week at a community-oriented, health-related agency, becoming an integral part of the organization.
During this program the student must identify an issue or problem of significance to the target community, and build their thesis based on their community experience, and present the results of their research to the faculty and their peers.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: Featured Story
posted by Nancy Meredith at 8:00 AM
Monday, December 21, 2009
Mesothelioma, a rare, aggressive cancer primarily caused by exposure to airborne asbestos fibers, can take up to 50 years to develop after exposure to asbestos has occurred. Scientists have not yet determined why some people with years of asbestos exposure never develop mesothelioma, while others with minimal asbestos exposure develop mesothelioma. Due to this, researchers believe multiple factors contribute to the likelihood of developing mesothelioma.
According to the Mayo Clinic, the following factors may increase the risk of mesothelioma:
Personal history of asbestos exposure. If you had a job where you handled asbestos and breathed in its dust and fibers, or if you have been exposed to asbestos fibers through other means, such as being around renovations where asbestos was disturbed, your risk of mesothelioma is greatly increased.
Living with someone who works with asbestos. Tradesmen who work with asbestos can inadvertently put their family at risk when particles that cling to their clothing, shoes, skin and hair and are carried into the house. This “second-hand” exposure, known as para-occupational exposure, can put others in the home at risk of mesothelioma.
Smoking. While smoking alone is not known to cause mesothelioma, the risk of mesothelioma is increased greatly in smokers who are exposed to asbestos.
SV40. Simian virus 40 (SV40), a virus originally found in monkeys, has been indicated as having a link to mesothelioma. Exposure to SV40 occurred to millions when receiving polio vaccinations, made from monkey cells, between 1955 and 1963. Scientists do not agree as to whether SV40 increases the risk of mesothelioma.
Radiation. Another past medical link to mesothelioma is through the radioactive substance thorium dioxide. This was used along with X-rays from the 1920s to the 1950s. Thorium dioxide was later found to cause cancer and the use was discontinued.
Family history. A family history of mesothelioma may increase the risk of mesothelioma. A study is underway by Wake Forest School of Medicine to determine how mesothelioma risk is associated with family history and genetic susceptibility.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma
posted by Nancy Meredith at 9:53 AM
Friday, December 18, 2009
Joseph W. Belluck, a lawyer with NY’s Belluck & Fox, says thousands of annual deaths will be linked to deadly asbestos fibers for decades to come.
New York, NY, December 17, 2009 — The upcoming year 2010 will bring another increase in deaths from malignant mesothelioma, a cancer closely associated with asbestos exposure, a New York personal injury lawyer says.
“A lot of people don’t realize that the number of cases of mesothelioma is still on the increase,” said Joseph W. Belluck, a partner in Belluck & Fox, a New York personal injury law firm that concentrates in representing victims of asbestos-related disease. “These deaths are tragic and ongoing. Unfortunately, even today, people are still being exposed to this cancer-causing material, and we will still see hundreds or thousands of asbestos-related deaths each year for decades to come.”
A 2009 analysis by federal health researchers at the National Institute of Occupational Safety and Health found that the annual number of deaths of malignant mesothelioma is still increasing. The mortality report found the number of U.S. deaths increased from 2,482 in 1999 to 2,705 in 2005, the most recent year of complete data.
The use of asbestos was sharply curtailed in the United States starting in the 1970s. But the mineral fiber was widely used for much of the 20th century, particularly in construction materials, insulation and plumbing. The disease typically appears 20 years to 40 years after people are first exposed to asbestos. That is why the death toll from the disease is still on the rise.
New cases reflect the legacy of decades of asbestos use and even today researchers estimate 1.3 million construction and general industry workers are exposed to asbestos dust, Belluck said.
Houses and buildings throughout the U.S. still have large amounts of asbestos insulation and other materials that will eventually have to be removed when the buildings are remodeled or demolished.
“The workers who conduct the asbestos removal risk getting the disease if proper precautions aren’t followed to protect them from inhaling the dust,” Belluck said. “Thousands of other workers are exposed to dust because of asbestos fibers that are present in the workplace.”
Researchers project the disease will remain above background levels until 2050.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma
posted by Nancy Meredith at 8:00 AM
Thursday, December 17, 2009
The Van Andel Institute in Grand Rapids, Michigan, a key institute conducting research for the treatment of mesothelioma, has initiated a program to raise awareness of cancer and to provide research funding at the same time.
Through Community for a Cure , Van Andel encourages schools to hold a game of their sport of choice to bring the school and community together to “raise awareness, celebrate survivors, honor loved ones who have passed away, and support research that gives hope to patients and families around the world.”
The next event will be held December 29, 2009, by Michigan’s Zeeland High School Men’s Swimming and Diving team. Their theme is “Kick Cancer One Stroke at a Time.”
The money raised during these events will support cancer research at Van Andel Research Institute (VARI). VARI has collaborated with Harvey Pass of New York University, co-author of “100 Questions & Answers About Mesothelioma,” to determine the molecular mechanisms of mesothelioma etiology and progression.
See Community for a Cure on Facebook.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: For Your Family, mesothelioma
posted by Nancy Meredith at 2:00 PM
Experts from around the world including the United States, Japan, and Australia have arrived in New Delhi, India for the international conference on environmental hazards. The conference entitled “Preventing Emerging Occupational and Environmental Risks in South Asia and Beyond” is focused on helping Asia prevent occupational diseases as well as to help physicians better understand asbestos-related diseases and the treatment of mesothelioma.
Gujarat Cancer Research Institute (GCRI) of India announced in August that 39 cases of pleural mesothelioma and three of peritoneal mesothelioma, cancers caused by exposure to airborne asbestos fibers, were reported.
The conference being held December 17-19, 2009, at the Maulana Azad Medical College (Centre for Occupational and Environmental Health) in New Delhi, India, was organized in collaboration with the Drexel School of Public Health in Philadelphia, Pennsylvania, the Collegium Ramazzini in Italy, and Maulana Azad.
The organizing schools have ties with the Maulana Azad Medical College’s Centre for organizing world class training in occupational and environmental health.
Topics to be addressed during the conference include:
- Occupational & Environmental Health and Corporate Social Responsibility
- Exposure Assessment
- Cancer in the Workplace
- Heavy Metal Exposure and Health Risks
- Noise & Health
- Risks in Health Care work
- Occupational Lung Disorders
Professor Arthur Frank, MD, PhD, from Drexel, one of the featured speakers, has spoken previously regarding the high rates of mesothelioma in many countries as well as the impact mesothelioma, and other similar diseases, has on a global scale.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: asbestos, mesothelioma
posted by Nancy Meredith at 8:00 AM
Wednesday, December 16, 2009
In support of the extraordinary efforts of oncology nurses, CURE is once again honoring a nurse in 2010 with their “Extraordinary Healer Award for Oncology Nursing.” CURE will honor three nurse finalists, as well as the individuals who nominated them, with round-trip airfare and two-night accommodations in San Diego, for recognition at the Oncology Nursing Society’s 35th Annual Congress, on May 13th, 2010.
CUREToday.com, the online version of CURE, is produced by CURE Media Group. The CURE publications have become “the source of information and inspiration for those on the cancer journey.” CURE magazine covers information for patients and caregivers for each stage of cancer.
Submit a nomination essay by April 15, 2010, recognizing the extra efforts given by your mesothelioma oncology nurse.
See Call for Essays for more information.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: For Your Family
posted by Nancy Meredith at 2:00 PM
When Marie Augustine of British Columbia was diagnosed with mesothelioma three years ago, her doctors told her there was nothing else they could do for her. She had pleural mesothelioma and her lung and pleura, the thin sac that protects the lungs, were fused together making the cancer inoperable. She was given 6 months to live.
Not willing to miss her 50th wedding anniversary still seven months away, Marie found a resolve to fight the disease. With the support of her husband and her family, she began taking various alternative treatments with each therapy causing slight improvements in her mesothelioma symptoms. Her son and husband stayed by her side encouraging her and helping to keep her moving.
Finally, they discovered a Brazilian herb called pawpaw that proved to be the right herb at the right time. The fruit from the tree is highly nutritious being rich in proteins, good fats, and complex carbohydrates. The leaves and twigs contain acetogenins known for their anti-cancer properties.
Marie was getting weaker and weaker when her son finally convinced her to give it a try. Within a month Marie began improving and she eventually went from not being able to get up on her own, to walking, driving and even attending local events.
Marie says, “I am extremely fortunate and I would like people to know there is hope. Just don’t give up.”
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma, Treatment News
posted by Nancy Meredith at 8:00 AM
Tuesday, December 15, 2009
A 73-year old malignant pleural mesothelioma patient in Japan has demonstrated that alternative therapies can result in the complete disappearance of a mesothelioma tumor. The patient took a mushroom extract as well as alternative parasympathetic nerve stimulation therapy. The complete disappearance of the tumor was found at the 29-month follow-up.
In September 2003 the patient underwent a cytoreduction pleurectomy, instead of an extrapleural pneumonectomy, due to the aggressiveness of the tumor. By May 2004 the patient was in poor condition, however, he refused continuance of chemotherapy and radiation treatments.
The patient instead began taking a mushroom extract containing Agaricus blazei Murill Kyowa (ABMK) in addition to alternative parasympathetic nerve stimulation therapy. The nerve stimulation is a modified acupuncture treatment that has shown immune system improvement. Four months after the start of the alternative treatments the tumor began to decrease. Over the next two years the tumor completely disappeared.
ABMK is an edible mushroom that has been used in other countries to treat a variety of diseases including cancer. It has been reported to inhibit tumor growth through both anti-angiogenic and immune-modulatory activity.
Sources:
Journal of Medical Case Reports
Surviving Mesothelioma
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma, Treatment News
posted by Nancy Meredith at 2:00 PM
by Nancy Meredith
The American Thoracic Society (ATS) and the Forum of International Respiratory Societies have named next year “2010: The Year of the Lung.” The goal of the initiative is to “raise awareness about the importance of lung health, generate social and political support for preventing and treating lung disease, and increase public and private funding for lung research.”
According to ATS hundreds of millions of people suffer from lung disease, but the impact of the disease is unrecognized throughout the world. This global campaign is recognized by 160 nations that ratified the first-ever international public health treaty.
The Forum of International Respiratory Societies (FIRS) made the declaration during the 40th Union World Conference on Lung Health in Cancun, Mexico on December 6, 2009. FIRS acknowledged that lung health has long been neglected in public discourse and that there is a need to unify different health advocates behind one purpose, thus declaring 2010: The Year of the Lung.
The European Respiratory Society (ERS) published “Climate change and respiratory disease” identifying the potential for an increase in respiratory diseases due to increased temperatures, higher concentrations of pollution and ozone, as well as higher levels of pollen due to longer seasons. The report, offered to raise awareness for the public of lung disease, also identifies the important role respiratory doctors have in combating major public health concerns like air pollution and occupational health hazards, such as asbestos.
Asbestos is responsible for lung diseases including asbestosis, mesothelioma, and lung cancer. In the United States, September 26th has been established as “Mesothelioma Awareness Day” by the Mesothelioma Applied Research Foundation. Senator Patty Murray (WA) and Congresswoman Betty McCollum (MN-4) introduced resolutions in Congress designating September 26th as “National Mesothelioma Awareness Day.”
The organizers have set aside lung recognition dates throughout the year including days for World Cancer Day, World Asthma Day, Cancer Survivor Day as well as Lung Health Day on October 27th. In addition, the organizers are offering suggestions for public events. Currently, October 14, 2010 is designated as World Spirometry Day to encourage hospitals to offer free lung tests to the general population. See the full list of awareness days and events scheduled.
The public is invited to review the information on the ATS website for education on lung diseases including cancer, TB, and pneumonia, guidelines for assessing lung health as well as information relating to occupational health related to asbestos.
Continue to check the 2010: Year of the Lung website for updated information.
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: Featured Story
posted by Nancy Meredith at 8:00 AM
Monday, December 14, 2009
The Mesothelioma Applied Research Foundation (MARF) announced today that several million dollars in grants has been awarded by the DoD for three mesothelioma research projects. The awards are in response to a 2007 directive from the Senate Defense Appropriations Subcommittee for DoD to fund mesothelioma research through its Peer Reviewed Medical Research Program (PRMP).
The funded projects include:
- Harvey Pass, M.D., co-author of “100 Questions and Answers About Mesothelioma,” and Margaret E. Huflejt, PhD. will investigate new markers for early detection of mesothelioma, and identify new therapeutic targets.
- Lee Krug, M.D. will lead a multi-site clinical trial of a new therapy based on the WT-1 vaccine.
MARF has been a staunch advocate for mesothelioma victims that Congress direct the DoD to include funding to promote research on diseases related to military service. Asbestos exposure, the primary known cause for mesothelioma, is a known hazard for sailors working on Navy ships. MARF estimates that one third of those who currently die from mesothelioma were exposed to asbestos on U.S Navy ships.
MARF representatives have met with elected government officials at the Foundation’s annual Washington, D.C. Advocacy Day, testified at hearings, distributed educational materials, and have sent countless emails and letters.
MARF is a national non-profit organization dedicated to finding a cure for mesothelioma “by funding mesothelioma research, educating and supporting mesothelioma patients, and advocating for a national commitment to end the mesothelioma tragedy.”
© MesotheliomaHelp.Net. All Rights Reserved. Reprinting or republication of this article or any portion of its content is permitted but must include the MesotheliomaHelp.Net link.
Labels: mesothelioma, Research News
posted by Nancy Meredith at 2:00 PM
Bernie Banton, known in Australia and around the world for successfully taking on the James Hardie company to increase the asbestos-related disease victim’s compensation fund, was honored in September by Australian Prime Minister Kevin Rudd with the launch of The Bernie Banton Foundation. Banton lost his battle with mesothelioma in November 2007.
The foundation, led by Mr. Banton’s widow, was officially launched at Banton’s eponymous center on the grounds of the Concord Hospital NSW. Prime Minister Rudd spoke of Mr. Banton at his acceptance speech in 2007 as having represented the great Australian trade union movement” and for being a “beacon of decency in his fight for compensation.”
Mrs. Banton said of the foundation, “we are the breath beneath the wings of asbestos disease sufferers, their carers and loved ones.” The Bernie Banton Foundation website lists their goals to: develop a support and education service for asbestos disease sufferers and their families throughout Australia; facilitate the education advancement and community awareness of asbestos amd its dangers throughout Australia; and promote research into asbestos-related diseases including provision of funding for each of the above purposes.
Banton suffered from asbestosis, mesothelioma and asbestos-related pleural disease (ARPD), which required him to rely on an oxygen tank. Banton was exposed to asbestos when he worked at Hardies for six years from the late 1960′s to the early ’70′s. According to Banton, the group with which he worked was known as the “snowmen” because they were covered from head to toe with the white dust of asbestos in the manufacture of kaylite.
Sources:
The Bernie Banton Foundation
Interview with Bernie and Karen Banton – ABC.net Australia
Bernie Baton Foundation on Facebook
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Labels: asbestos, mesothelioma
posted by Nancy Meredith at 7:00 AM
Friday, December 11, 2009
Mesothelioma is a rare cancer, caused by asbestos exposure, with many people still unaware of the disease, or of any of the other asbestos-related diseases such as asbestosis. Some of the mesothelioma and asbestos awareness foundations, as well as cancer organizations, offer information as well as apparel, mugs, and other gifts as a means to get the word out about the tragedy of mesothelioma and all cancer.
Earlier this month suggestions were given for buying gifts for a family member or friend with mesothelioma. Look through the online shops of the following mesothelioma and cancer sites and consider purchasing a gift that raises awareness about the deadly disease.
Mesothelioma Applied Research Foundation . Here you can find t-shirts, greeting cards and Awareness bracelets.
Lung Cancer Alliance Webstore. All of the products in the Lung Cancer Alliance store are embroidered with the LCA logo. 25% of all purchases goes to supporting Lung Cancer Alliance’s unique patient support and advocacy programs.
Livestrong – The Lance Armstrong Foundation. The ubiquitous Livestrong logo can be found on anything from cycling clothes, to t-shirts, to waterbottles and even blankets.
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Labels: For Your Family
posted by Nancy Meredith at 10:00 AM
Thursday, December 10, 2009
Mesothelioma, a cancer caused by asbestos exposure, can affect the lining of the lungs known as pleural mesothelioma, or the lining of the abdomen resulting in peritoneal mesothelioma. In rare instances, the lining of the heart can be affected resulting in pericardial mesothelioma. Regardless of the type of mesothelioma, many of the symptoms are still the same.
The primary symptoms for mesothelioma sufferers is shortness of breath and chest or abdominal pain. In addition, mesothelioma patients often suffer from many of the same symptoms identified by the American Cancer Society as “The Seven Warning Signs of Cancer.”
Think of the word CAUTION to remember the seven early warning signs:
A sore that does not heal.
Unusual bleeding or discharge.
Thickening or lump in the breast, testicles, or elsewhere.
Indigestion or difficulty swallowing.
Obvious change in the appearance of a wart, mole, or mouth sore.
Nagging cough or hoarseness.
The following additional symptoms are commonly noted among mesothelioma and other cancer patients.
- Persistent headaches
- Unexplained loss of weight or appetite
- Chronic pain in bones or other areas of the body
- Persistent fatigue, nausea, or vomiting
- Persistent low-grade fever, either constant or intermittent
- Repeated instances of infection
If you experience any of these warning signs, you should see your doctor right away. Many of the warning signs can point to less serious medical problems, but the only way to know for sure is to discuss them with your doctor. If you have been exposed to asbestos, be sure to alert the doctor to that as well.
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Labels: mesothelioma
posted by Nancy Meredith at 2:00 PM
Another new mesothelioma drug clinical trial is slated to begin in December 2009. Australian drug maker Bionomics Ltd plans to conduct a Phase II clinical trial of its anti-cancer drug BNC105. They will conduct the tests on 60 mesothelioma patients in Australia.
The drug has shown great promise thus far by killing cancer cells when testing with solid tumors in animals. Bionomics believes patients will not become resistant to this drug as often happens with other chemotherapy treatments. BNC105 will also undergo a Phase II trial in the United States for the treatment of renal cancer.
The primary goal of this study is to determine the safety and maximum tolerated dose of BNC105 in patients with advanced solid tumors. Bionomics says BNC105 “can extend the life of people suffering from mesothelioma and provide them with a better quality of life.”
Sources:
Bionomics Clinical Trials
The Sydney Morning Herald
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Labels: ClinicalTrial, mesothelioma
posted by Nancy Meredith at 7:00 AM
Wednesday, December 9, 2009
In “Fight Asbestosis Inflammation to Prevent Mesothelioma from Forming ” researchers identified chronic inflammation from asbestosis as a risk for developing mesothelioma.
Below are some suggestions from the book “Life Over Cancer” by Keith I. Block, M.D., for managing inflammation through diet. For patients battling asbestosis, making some dietary changes may not only lead to improved health, but can prevent the development of mesothelioma.
This information is also beneficial for anyone currently undergoing mesothelioma treatments.
Minimize Inflammation “Offenders.” Avoid cigarette smoke, avoid excessive alcohol consumption, maintain a normal bodyweight, and get plenty of sleep.
Exercise – but be careful. If you are not actively exercising, but are planning on getting started be careful of injuries. This could lead to additional inflammation, and this should be kept to a minimum.
Salicylates. Salicylate is a natural anti-inflammatory compound found in foods. While this is the active ingredient in aspirin, it does not prevent clotting or lead to gastrointestial discomfort. Tomatoes, turmeric, and wintergreen are the best sources for salicylates.
Flavonoids. Flavonoids act much the same as Celebrex and other anti-inflammatory medications. Berries such as cherries, raspberries, blueberries and blackberries are very high in flavonoids. Other foods such as spinach, broccoli, sweet potatoes, and zucchini as also rich in flavonoids.
Spices. Whole-leaf types of the following spices also offer anti-inflammatory benefits. Basil, oregano, bay leaves, rosemary, sage, thyme, and mint.
Always check with your physician for information regarding diet and exercise during your mesothelioma and asbestosis treatment. Also check with your physician if you are considering taking supplements.
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Labels: mesothelioma, treatments
posted by Nancy Meredith at 2:00 PM
Study: Phase II Study of Everolimus (RAD001) for the Treatment of Malignant Pleural Mesothelioma With Merlin/NF2 Loss as a Biomarker to Predict Sensitivity
Start Date: December 2009
End Date: December 2011
Recruiting Contacts:
Contact: Lee Krug, MD (212)639-8420
Contact: Christopher Azzoli, MD (212)639-2131
Information:
Memorial Sloan-Kettering Cancer Center is conducting a clinical trial for patients with a confirmed diagnosis of epithelioid, sarcomatoid, or mixed-type malignant pleural mesothelioma that is not amenable to surgery for treatment with everolimus.
The purpose of this study is to find out what effects, both good and bad, that everolimus has on the cancer. Everolimus works by blocking a protein that helps the cancer grow. The goal of this clinical research study is to learn if the study drug everolimus can shrink or slow the growth of mesothelioma.
The enrollment goal for this study is 39 participants. At the end of the study, if 17 or more patients show clinical benefit out of a total of 39 patients enrolled, the regimen will be considered worthy of further investigation.
For complete information see ClinicalTrials.
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Labels: ClinicalTrial, mesothelioma
posted by Nancy Meredith at 8:00 AM
Tuesday, December 8, 2009
Started in 2006 as a pilot project, The Cancer Genome Atlas (TCGA) was launched by the National Cancer Institute (NCI) and the National Human Genome Research Institute (NHGRI), both part of the National Institutes of Health (NIH) “to accelerate our understanding of the molecular basis of cancer through the application of genome analysis technologies.”
Scientists were able to develop genome characteristics for glioblastoma, the most common brain cancer in adults. Based on this, and other successes of the project, President Obama provided funding to expand the project for five more years to study 20 types of cancer. The goal of the project is to improve the ability to diagnose, treat and prevent cancer.
In the past, scientists have indicated that differentiation of tumors found in the lung can be challenging, specifically differentiation of mesothelioma and lung adenocarcinoma. Understanding tumors at the genetic level “could help determine the kind of radiation and chemotherapy treatments a lung cancer patient would best respond to,” said Dr. Albert Rizzo, a Newark pulmonologist.
The public can assist with this project by offering to donate tissue. In addition, bring the program to the attention of health care providers. The NIH encourages spreading the word for others to understand the importance of this information in helping to revolutionize cancer care.
Sources:
National Cancer Institute
Delaware Online
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Labels: Research News
posted by Nancy Meredith at 2:00 PM
The Asbestos Disease Awareness Organization (ADAO) announces their 2010 conference will be held April 9-11 at the Marriott Renaissance in Chicago, Illinois. The theme focuses on ADAO’s global mission: Action to Prevent, Detect and Treat Asbestos-Related Diseases.
The conference, sponsored by the Barbara Ann Karmanos Institute and the International Ban Asbestos Secretariat, will feature sessions including information on preventing asbesos exposure, identifying occupational and non-occupational exposure, public health and environmental aspects, as well as early warning symptoms and trauma for asbestos-related diseases such as mesothelioma.
Conference awards will be presented to individuals who have made a difference in their work towards ADAO’s mission and towards raising awareness of asbestos-related diseases.
The recipient of the Dr. Irving Selikoff Lifetime Achievement Award is Dr. Hedy Kindler. Dr. Kindler is the Director of the Mesothelioma Program and an Associate Professor of Medicine in the Section of Hematology/Oncology and a Member of the Cancer Research Center at the University of Chicago.
Dr. Kindler who is also on the Science Advisory Board of the Mesothelioma Applied Research Foundation will be presenting several sessions at the conference including “Advances in Malignant Mesothelioma Treatment.”
See the full agenda and list of award recipients for the ADAO conference.
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Labels: asbestos, mesothelioma
posted by Nancy Meredith at 7:00 AM
Monday, December 7, 2009
When airborne asbestos fibers are inhaled, the fibers may penetrate the breathing passages causing irritation and inflammation of lung tissue. Asbestosis, mesothelioma, and lung cancer are all potential risks for anyone that has been exposed to asbestos fibers for a period of time.
Asbestosis is the non-cancerous illness caused by asbestos exposure while mesothelioma is cancer caused by the exposure. Although asbestosis does not develop into mesothelioma, researchers have found that chronic inflammation can contribute to the development of cancer. In the case of asbestosis, mesothelioma can develop.
The inflammation-cancer connection is made when chronic inflammation causes the bodies immune system to constantly fight off infection. While the body typically fights short-term inflammation, an acute “battle” creates a fertile environment for tumors to form.
Researchers are focusing on methods to control the inflammation to reduce the risk of cancer. In one study, patients with pre-cancerous polyps given Celebrex for three years experienced about a two-thirds reduction in the number of polyps likely to become cancerous, compared with patients given a placebo. Antibiotics to combat infection and anti-inflammatory medicines are often prescribed by physicians to help fight chronic inflammation and infection.
According to Richard Peek Jr., MD, of the Vanderbilt-Ingram Cancer Center at Vanderbilt University in Nashville, TN, “inflammation induced by infection is thought to contribute to between 10 and 20 percent of cancers worldwide.”
There is still more research to be conducted, and scientists have found that there are genetic variations among individuals that can explain why only a certain percentage of those with chronic inflammation get cancer. In addition to asbestosis leading to mesothelioma, other cases have shown inflammation from Hepatitis can lead to liver cancer, and chronic inflammatory bowel disease can lead to colorectal cancer.
See CureToday.com for additional information.
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Labels: asbestos, mesothelioma
posted by Nancy Meredith at 6:16 PM
At The Block Center for Integrative Cancer Treatment, Dr. Keith Block, MD, offers cancer patients an innovative method to receive chemotherapy that takes advantage of an individual’s circadian rhythms and allows patients to receive their chemotherapy at a time when it will be most effective and least toxic.
The delivery of chronomodulated chemotherapy is through a portable, computerized pump that fits in a small fanny pack and allows patients to participate in normal daily activities such as walking and yoga while they are receiving their treatments.
Chronomodulated administration of chemotherapy has been shown to be more effective by allowing larger doses with lower toxicity to be delivered. According to Dr. Block, each drug “has an optimal time when it is least toxic and most effective.” In addition, there are times when the cancer cells are more active. Delivering the drugs at the optimal time improves the efficacy of the treatment by being able to kill more cancerous cells while preserving the healthy cells.
Side effects through the conventional method of chemotherapy are often debilitating, leading many cancer patients to stop treatments. Through chronomodulated chemotherapy side effects are minimized and patients are more able and willing to complete their treatments leading to higher success in cancer treatment.
Mesothelioma patients should check with their specialists to determine if this is an option for them. Chronomodulated chemotherapy is not for everyone, and a thorough evaluation of each case is conducted to determine the appropriateness of the therapy.
Dr. Block is Director of Integrative Medical Education at the College of Medicine at the University of Illinois, Chicago, and a member of the National Cancer Institute’s PDQ Cancer Complementary and Alternative Medicine (CAM) Editorial Board in Bethesda, MD.
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Labels: mesothelioma, treatments
posted by Nancy Meredith at 11:00 AM
Sunday, December 6, 2009
The playing field inside Utah State University’s Romney Stadium was officially named the Merlin Olsen Field during a half-time ceremony in a game between Utah State and St. Mary’s College men’s basketball teams on Saturday. Merlin Olsen, currently undergoing chemotherapy treatment for mesothelioma, was a USU All-American football player from 1959-1961.
Olsen graduated with a finance degree in ’62 but went on to play professional football for the LA Rams for 15 years where he was named the NFL’s Defensive Rookie of the Year in 1962 and was the league’s Most Valuable Lineman in 1973.
USU President Stan Albrecht honored Olsen saying, “I can’t think of anyone that has carried the Utah State banner so proudly and with such distinction over the course of a lifetime than has Merlin Olsen.” Olsen is recognized for generously giving his time and financial resources to USU over the years.
Mr. Olsen’s mesothelioma is diagnosed as being confined to one lung, and he has currently undergone three chemotherapy treatments. A dedication ceremony will be held next fall during the 2010 Aggie football season in conjunction with the 50th anniversary of USU’s 1960 Sun Bowl team led by Olsen.
Stadium Dedicated for Former Football Player
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Labels: mesothelioma
posted by Nancy Meredith at 8:10 PM
Friday, December 4, 2009
The holiday season is here and finding the perfect gift for someone on your list with cancer can be challenging. There are many practical and useful products that the patient may not even be aware that they need.
Here are a few suggestions to consider when shopping for a cancer patient this season:
Blanket. Most mesothelioma patients get very cold during chemotherapy treatments due to the intravenous fluids entering their system as well as being stationary during the treatments. While the chemotherapy center offers blankets to all patients, having their own blanket from a friend or family member has special meaning and brings an added level of comfort during the treatments.
Bed Tray or Lap Desk. A tray or lap desk will provide a workspace and place to put pens, paper, books, and reading glasses that will be within easy reach. The tray also serves as a table for food and drinks.
Arm Chair Pocket. Pockets or caddies for an easy chair or sofa is another means for staying organized and keeping TV and reading essentials within reach. These organizers typically offer various sized pockets to hold the remote control, eyeglasses, newspapers, crossword puzzle books, pens and more.
Resistance Bands. Simple muscle strengthening exercises can enhance the immune system for mesothelioma patients and improve strength for minor day-to-day activities. Even if confined to a bed or chair, a resistance band (a “stretchy band”) can be used for upper-body exercises. If giving this gift be sure to include a “how-to” list of basic exercises and have the patient seek doctor’s approval prior to use.
Rubber-Soled Slippers. One can never have too many pairs of slippers. Make sure to get rubber-soled slippers to avoid potential slip and fall accidents.
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Labels: For Your Family
posted by Nancy Meredith at 3:24 PM
Proper nutrition during your mesothelioma treatments is important to keep your strength up, maintain your weight, and to better fight off infection. Often times, however, patients will lose their appetite from the chemotherapy and stress.
Mesothelioma treatments can lead to various other eating problems such as changes in taste or smell, lactose intolerance, nausea, and diarrhea. According to the National Cancer Institute when you have cancer, you should focus on taking in enough calories by finding foods you like and can tolerate.
If you have trouble chewing and swallowing, you may need to add sauces and gravies, drink milkshakes or supplemental drinks such as Ensure. During this time of physical stress you can “eat anything you want and as much as you want,” says Dr. Harvey Pass, co-author of “100 Questions & Answers About Mesothelioma.”
If you are having difficulty determining what to eat and drink, or how best to prepare meals, consider the following suggestions:
- Drink plenty of liquids. Now, more than ever it important to get plenty to drink – especially on days you cannot eat.
- Eat high-calorie and high-protein foods such as cheese, eggs, and peanut butter.
- Eat when you have the biggest appetite. Consider eating a bigger meal when you feel best then drink liquid meal replacements for your other meals.
- Snack throughout the day as you feel hungry.
Your tastes and tolerance to food may change daily as you undergo treatments. Keep a variety of foods and drinks available to accommodate your changing needs. Communicate with your mesothelioma medical team and meet with a dietician if you need additional tips and assistance with maintaining proper nutrition.
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Labels: mesothelioma
posted by Nancy Meredith at 9:32 AM
Thursday, December 3, 2009
Managing your cancer with all of the treatments, doctor visits, and paperwork can easily take up your day leaving little time left over to do simple house cleaning chores.
Now, with “Cleaning for a Reason” women undergoing cancer treatments, including mesothelioma, can receive free housecleaning services for up to 4 months. With a mission to provide “free professional housecleaning, and maid services to improve the lives of women undergoing treatment for cancer” this non-profit organization has over 350 cleaning companies supporting their effort across the United States.
With the high demand for these services, the website notes that they have accepted over 2,000 applications in the past two weeks, they will begin processing new applications on Monday, December 7.
To apply for cleaning services or to find out how you can help visit the Cleaning for a Reason website.
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Labels: mesothelioma
posted by Nancy Meredith at 2:00 PM
Diagnosis of any terminal disease can leave patients feeling depressed, anxious, and angry. With the rarity of mesothelioma, patients diagnosed with the disease may have the added feeling of isolation with few people with which to discuss their feelings and concerns.
Keeping your emotions inside may lead to stress and can leave you with additional physical discomfort. Finding someone that you trust and can confide in will not only help you feel better, but can lead you to helping other mesothelioma victims down the road.
While a patient advocate provides emotional support, additional individuals and support networks can be beneficial. Below are some suggestions for locating confidants.
- Ask your primary care physician or oncologist for referral to a social worker or therapist who specializes in treating cancer patients.
- Your church or other religious organizations often have support groups that hold regular meetings.
- Many non-profit organizations dedicated to mesothelioma patients offer support referral services and can put you in touch with other mesothelioma patients.
- Ask friends and family if they know of any support groups or patients with mesothelioma to which you can talk.
Talking with others that have battled mesothelioma, or are trained counselors, who can give you insight into your emotions and into what’s to come can ease your mind and allow you to focus on your treatments and recovery.
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Labels: mesothelioma, Treatment News
posted by Nancy Meredith at 8:40 AM
Wednesday, December 2, 2009
Hospitals, physicians, non-profit organizations and companies all realize the benefits of patient advocates for patients diagnosed with mesothelioma and other life-threatening diseases. As if dealing with mesothelioma isn’t stressful enough patients have to sort through insurance documents, apply for medical leave, decipher medical bills, and hold their family together all at the same time.
All of this can be overwhelming, and having someone to turn to for support can be a big relief and can help you get results. Patient advocates not only give emotional support to the patient, but they stand up for the patient to the medical teams, to the insurance companies, and to the employers if needed.
While services offered by mesothelioma patient advocates vary depending on where the service is provided, many offer the following support options:
- Case management services
- Liaisons between the patient and his insurer
- Family medical leave (FMLA) applications
- Arrangment of transportation to treatments, and childcare during treatments
- Settlement of billing issues
- Researching mesothelioma treatment options available
- Taking notes as the doctor provides information
- Explaining what to expect during your mesothelioma treatments
Ask your physician or a hospital receptionist if they offer patient advocate services. M.D. Anderson Cancer Center in Texas, for example, provides patient advocates 24 hours a day/7 days a week, and are managed through a central office.
If an advocate service is not provided through the hospital turn to Mesothelioma Applied Foundation, Meosthelioma Research Foundation of America or other non-profit organizations for recommendations. Also, look through the local phone book for listings for companies providing advocacy services.
Having the support of a patient advocate can improve the quality of care (as they ensure you ask the appropriate questions or they do the research for you), relieve your financial worries (as they deal with your medical bills), and relieve stress allowing you to focus on your health and family.
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Labels: mesothelioma
posted by Nancy Meredith at 2:00 PM
Once someone has been diagnosed with mesothelioma, friends and family members will be concerned and will be contacting the patient directly for updates on his health and treatments. While the outpouring of support can be comforting, knowing what is appropriate to share can be difficult.
The thought of returning calls and repeating the same information can also be stressful. Before sharing information with friends and other family members, consider creating a mesothelioma communication plan with the immediate family. Following are some suggestions for what to include in a plan:
- The patient is in control of what he wants to share. Let him identify exactly what he is comfortable with letting family members know versus what to tell friends.
- Read up on mesothelioma. Before passing information along to either family or friends make sure that the patient and immediate family understand key details about the disease itself. Mesothelioma is still a little known disease – questions will be fast and furious from everyone.
- What can I do for you? This question will come from just about everyone, and they really do want to help. Seriously consider what might be helpful: grocery shopping, finding a book, walking the pet – even small things will seem big once treatments get started.
- Can I come see you? This will be another popular question and identifying who can visit and when they can visit should be known to the immediate family. Too many visitors can be stressful, but no one wants to accidentally turn away a good friend.
- Create a Phone Tree. Set up a process to allow others to help get the word out about the patient’s status. Make the necessary call to get the message started and let others do the rest of the work. Include information concerning visitation, assistance requests, etc.
With some careful planning communicating the information about a mesothelioma diagnosis can be simplified, while still keeping friends and family fully informed.
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Labels: For Your Family
posted by Nancy Meredith at 8:00 AM
Tuesday, December 1, 2009
The American Association for Cancer Research and the International Association for the Study of Lung Cancer are joining forces to sponsor the conference “Molecular Origins of Lung Cancer: Prospects for Personalized Prevention and Therapy.” The conference will be held January 11-14, 2010, at the Loews Coronado Bay Resort in Coronado, California.
The program will focus on the latest in lung cancer research and will feature many speakers from the University of Texas M.D. Anderson Cancer Center known throughout the world for their initiatives in the research and treatment of mesothelioma and their focus on personalized medicine.
Steven M. Albelda, M.D, William Maul Measey Professor of Medicine, Vice Chief, Pulmonary, Allergy, and Critical Care Division Director of Lung Research,Co-Director, Thoracic Oncology Laboratories at University of Pennsylvania Medical Center, whose research focuses on the design of new treatment strategies for lung cancer and mesothelioma will present a session entitled: “Personalizing novel mesothelioma treatments by analyzing interferon response pathways.”
Additional sessions offered include topics covering:
• Early Detection and Prevention
• Drug Design and New Targets
• Cancer Stem Cells
• Genome-wide Approaches to Risk
• Tumor Profiling
• Lung Biomarkers
• Plus a special session on Advocacy, Regulatory, and Funding Issues
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Labels: mesothelioma, Research News
posted by Nancy Meredith at 2:00 PM
While scientists continue to explore why certain people exposed to asbestos are susceptible to contracting mesothelioma they suggest avoiding exposure to asbestos as the first step in preventing the spread of the disease.
The following tips can also be beneficial in reducing the risk of getting mesothelioma:
- Wear protective clothing when working around asbestos. Asbestos is no longer used in new building construction, but older buildings may contain this harmful substance, so be sure to take precautions when remodeling or demolishing older buildings.
- Get Health Screenings. If you have been exposed to asbestos on the job contact a doctor – even if you are not experiencing symptoms. Early detection of asbestos-related illness can significantly increase your survival rate and improve your quality of life.
- Question asbestos risks. Bring any potential asbestos-exposure risk to the attention of the proper authorities.
- Follow recommended industrial procedures during asbestos removal. You should contract with a certified asbestos removal expert for large renovations, however, for small jobs certain methods such as wetting down surfaces with water will prevent fibers from entering the air (such as when working on car brake pads).
- Read About Asbestos and Mesothelioma. Stay informed on asbestos-related news and mesothelioma treatments and breakthroughs. The more you know the better prepared you will be to avoid potential risks.
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Labels: mesothelioma
posted by Nancy Meredith at 8:00 AM